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My hysterectomy journey – Marianne’s story

My hysterectomy journey has not been straight forward. I’d been experiencing serious problems with flooding with urine when I had a cold since my son was born 12 yrs ago. When I sought help yrs later, it was put down to pelvic floor problems. Because I couldn’t cope with the intensity of physio requirements, with no scans I was declined surgery.

Over the past 2-3 years I developed problems with my bowels and every morning, had to make frequent visits to the loo, with the occasional ‘accident’. I got fobbed off at primary care level. So, earlier this yr, I went to the GP with very heavy periods and pelvic pain.

A referral to surgical assessment showed a ‘mass’ hiding my ovaries. The pain just got worse and worse, and for two weeks, I was told I could have ovarian cancer. My local hospital weren’t very helpful and I could never get past administrators by telephone.

It was determined I had a large fibroid attached to my uterus but wasn’t aware that it was also feeding and growing on the blood supply of the rest of my stomach!! I got fed up, and taking strong painkillers took my spark away. I found I did have a choice of where to be treated, and changed GP and got referred to a different hospital.

I had my total abdominal hysterectomy a week ago. I was very nervous but knew I was in good hands. I was talked to by the anaesthetists who gently put me to sleep. I lost two litres of blood but had amazing care through the night. I woke up feeling a bit sick but much less pain.

A week later, I’m doing really well at home after a 3 day admission. My bowels are fine, I’m not incontinent anymore because there is no pressure on my bladder, my anaemia seems to be improving, and I’m getting stronger everyday. I’ve got over-emotional 3 times but was told this would happen. I went straight onto HRT patches which seem to suit me. I’m off those nasty painkillers and I’m really looking forward to getting back to work. Its frustrating not being able to drive at the moment but you have to plan for that, so Internet shopping and lifts off family are keeping me going.

Don’t get fobbed off by medical people, know that you have rights, do your homework, pre-plan how you recover. It’s your body, which also means taking control yourself. I also joined this site as part of my recovery plan and its really useful!! I’m feeling good!!

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in my own words book coverIn My Own Words: Women’s Experience of Hysterectomy is full of many other real-life stories from women the world over.

Other people’s stories help women feel less isolated. They show that they aren’t going mad, missing the point or stupid; get your copy today and share the stories that help you feel less alone.

6 thoughts on “My hysterectomy journey – Marianne’s story

  1. Hi, I had my womb removed on 26 Jan 17. This was due to reoccurring fibroids 2 x the the size of grapefruits one pressing on my bladder and the other pressing on my bowel. Not very pleasant. Diagnosed 12 months ago the doc suggested injections to shrink them to avoid cutting my lower abdomen. But no joy with that and here I am 3 days post surgery. Struggling sleeping as I can get comfortable. Anyone got any suggestions.

  2. I am having a sub total hysterectomy because of a 15 centre metre fibroid on my bladder on 2nd February, terrified, help please

    1. Just had a total with over in conservation and already am relieved that the surgery was over with. Be prepared for very painful wind,abdomen tenderness and a hiccup in your bowel movements. Do drink plenty but sip cold drinks to avoid stomach cramps. Perhaps consider eating 2/3 prunes which will do the trick! Accept the help thay is around because this will allow you to heal properly in the quickest time possible. There can be horror stories but my guess is that your life has probaby been degenerating up to the point where you had made the decision to undertake this surgery. So step forward in faith that you will be well!

    2. Hi Shirley, are you able to do any pre-op abdominal strengthening exercises like swimming, as this has helped me a lot. And have you any support post op, AA you will need it as least for the first few weeks?

  3. Some of us get there the hard way… I think you should eliminate fever firstly, with a thermometer , because if you have a temperature of 38 Celsius or more you are possibly developping infection . If it reaches 40, go to hospital , otherwise GP next day. If no fever, you may be having ” hot sweats”, a menopausal trait. Mine have been so uncomfortable I’ve just increased the strength of my Eostrogen patches. You sound like you could do with more information. Don’t be afraid to speak up and ask for help or information. ?

  4. Hi girls, hope you all are having pain free week. I had my total hysterectomy my endo was cleaned,while operating Dr found my left urethra was damage so they put stent to repair the damage. Stent would be taken out after 5 weeks I was better for 2 days only,had UTI with temperature was on IV antibiotic for 5 days so in total I was 10 days in hospital all my scanning was also done, all report normal,yesterday I was discharge. still I don’t feel like my self,body pain fatigue and I also feel pain under my both arms feel bit sore feel having painful lump as well.yesterday night I was chilled and then started to shiver.mid night I was sweating. Don’t understand what is going on,is there any one who could help me please and give advice on what is happening to me and what should I do.

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