I am now 7 months 2 weeks after my hysterectomy and still experiencing debilitating post hysterectomy fatigue. I had an emergency procedure and was not well enough to have it having had such severe bleeding, anaemia and admissions for blood transfusions in the weeks preceding.
I am a worrier (a phrase that you will see later became relevant !) – it’s in my nature, so you can imagine what something as significant as a sub-total abdominal hysterectomy did to the worrying part of my brain.
I discovered I had troublesome fibroids about 16 years ago, I was 36 at the time. The first one was large and causing some very heavy bleeding. My gynaecologist at the time suggested a hysterectomy as I already had my children, I felt hysterectomy was a very drastic measure at 36 and went on a waiting list for a new non invasive surgery called fibroid embolisation.
I’m writing this for all the women out there who are facing the prospect of a hysterectomy because this is my hysterectomy resurrection story. Maybe you feel scared of the unknown. Maybe you’ve read some crazy horror stories about the procedure. Maybe (like it was with me) it’s your first ever operation and you’re absolutely petrified. I’m writing this for anyone who has any fears at all because I want to tell you all that it will be ok and will much more than likely not be as bad as you think. It’s difficult to know how to begin my story, other than to marvel on what an incredible journey it’s been. A journey with lots of ups and downs, highs and lows, but one that – no matter how hard and testing – has all been worth it…
Irmagean shares some practical preparation and knowledge of her hysterectomy earlier this year. In 2011 I was referred to an OB to discuss my heavy periods as a result of fibroids, at that time she suggested an IUD. While it was good having no periods with the IUD, I was having a period every day with light bleeding which required a light panty liner. I removed the IUD after a few months.
I underwent an abdominal hysterectomy on 14th June this year having had problems for the last two years due to a rather sizeable fibroid – everything was taken out with the exception of my ovaries. There seems to be very little information available generally with the exception of what is provided through the Hysterectomy Association and the forums and information they provide which have proven invaluable and very reassuring.
I was 12 when the pains first started. Excruciating pains such that I would count the hours between pain killers and hide at the back of the class trying not to cry. I watched my mother go through the same thing so I figured it was normal. Periods were to be feared each and every month. They were never on time, never when I expected them and always left me tired. But I carried on.
I had a total abdominal hysterectomy just after my 43rd birthday due to 2 very large fibroids making my uterus the equivalent of a 16 week pregnancy. It was the second time the fibroids had re-occurred having already had a myomectomy 9 years ago.
My Story – Hi I am 46 and was diagnosed with 2 small fibroids six years ago. I was told to go away and was not monitored. At that time there was very little information about fibroids. Last year on holiday I noticed a large mass in my abdomen which turned out to be a now very large fibroid (size of a 24 week pregnancy). I was very lucky that the only symptoms I suffered from were heavier periods and the feeling of a full bladder during the day and the night. I was advised by my consultant that as my childbearing days were over that a hysterectomy was a good option. There is a lot of information now about fibroids and I wish when I was diagnosed six years ago that I had insisted on being regularly monitored and insisted on a less invasive form of treatment.