Endometriosis

There is no agreed theory to explain why endometriosis occurs, however there are claims that more that one million women suffer from it in the UK and the Endometriosis Society suggests that an average length of time to make a diagnosis is about seven years. The OXYGENE (Oxford Endometriosis Study) study has found that there does seem to be a genetic element to endometriosis. http://humupd.oxfordjournals.org/content/7/4/411.full.pdf

Endometriosis occurs when the cells of the endometrium (lining of the uterus) are found in other parts of the body. In the same way that the lining of the uterus swells and shed each month as a period, these growth also swell and bleed, but as they are embedded in tissue, the blood cannot escape and so it forms blood blisters that will in turn irritate and scar the surrounding tissue which will then form a fibrous cyst around the blister. This can also result in scarring on the ovaries, fallopian tubes and uterus which may then lead to infertility as they can make transfer of an ovum(egg) from the ovary to the fallopian tube very difficult. They can also stop passage of an egg down the fallopian tube to the uterus. Occasionaly when the scarring is very bad, it can stick to the wall of the abdominal cavity and other organs which will be painful when it tears away and leave scars.

It is believed to be caused by a “retrograde menstruation” where fragments of the lining are shed backwards rather than through the vagina. Women may suffer no symptoms at all or they may be great pain when they have a period or during sex and periods may be very heavy. Initial treatment will be with hormone drugs that either reduce or stop the periods altogether and which allow the blisters to heal, however if the ovaries are affected then removal may be necessary.

Symptoms

• painful periods and pain/ache in the lower abdomen before or during your period
• pain in the lower back
• one of the most common symptoms are dull aches or sharp pains in the pelvis
• pain during or after sex
• pain with bowel movements
• painful urination
• more frequent or totally irregular periods
• spotting of blood before a period is due
• infertility

In many cases there may be no symptoms at all and the amount of pain experienced often bears no relationship to the amount of endometriosis found.

In all cases it is necessary to perform a laparoscopy to confirm a diagnosis. In this case two small incisions will be made in the abdomen under general anaesthetic, an amount of gas will be pumped into the abdominal cavity to enable a clearer site of the organs and a small camera will be inserted into the second incision so that the surgeon can see how clear the uterus is.

What Treatment is Available?

Consideration will be given to how severe the disease is, the woman’s’ age, her desire for children and how bad the symptoms are before a surgeon will make a recommendation about treatment.

Observation is often the first option, particularly for those who have no symptoms or whose symptoms are mild.

Pregnancy is thought to help reduce or clear endometriosis because of the increase in the ratio of progesterone to oestrogen.

Drug therapies may include pain relief only. They may involve the use of hormones to produce either a pseudo-pregnancy with contraceptives or a pseudo-menopause with gonadotrophinic drugs such as Danol, Decapeptyl, Dimentriose, Prostap, Suprecur, Synarel or Zoladex. Both of these drug regimes will reduce the amount of oestrogen produced by the ovaries, the hope being that as endometriosis reduces and often disappears when oestrogen is no longer produced (such as after menopause), then it will become dormant long enough for it to die off.

There are a number of side effects particularly linked to the pseudo-menopause regime which may include: menopausal symptoms as well as changes in bone density, weight gain, excess hair growth (due to the testosterone included in some). If you experience any such side effects you should discuss the treatment with your GP.

Progesterone may also be used to treat endometriosis and over a period of time it can cause it to die off. However, side effects include: oedema (water retention) weight gain, bloating, depression and spotting between periods.

Laser Surgery is used during a laparoscopy to burn off the growths caused by endometriosis. Whilst it is reasonably successful, it is dependent upon the ability of the surgeon to remove even the smallest amount of endometriosis, as this can cause a re-growth to occur.

Recommended Reading:

star buy101 Handy Hints for a Happy Hysterectomy – £7.00 (paperback)or £4.99 (ebook). This is our own best selling book written by Linda, CEO of the Hysterectomy Association. Jam packed full of useful hints, tips and advice for every stage of your hysterectomy from planning to getting back to work.

  • The Pocket Guide to Hysterectomy – £3.50 from The Hysterectomy Association. This is essential reading and tell you everything you need to know about hysterectomy, it documents everything on the website, plus additional information not available elsewhere.

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2 thoughts on “Endometriosis

  1. carol byford

    Had hysterectomy in March 2010 & last year had bit of bleed. doctors said maybe thrush . since then bleed about three more times and docs done scan and said I have endometrosis . Have been bleeding four days now seems worce. Very fed up and distressed just been diagnoesed with diabetes too. Had hyserectomy for fibroids after other methods failed was bleeding heavy for two years.!

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