What our visitors say about us

Hello, I have found the website very useful. I’m now 6 weeks post operation total hysterctomy. I found that there was a lot of info pre op – from the consultant and doctors but not much post op! I was told to rest, not do any heavy lifting or hosuework and do my pelvic floor exercises and that was all so when I eventually did find your website it was very informative and I realised that some of my symptoms were quite normal – especially the bowels or lack of bowel movements which nobody told me about – and I was frightened!! (which sounds silly now!! but it was scary I thought I might tear the stitches!) as it was the day after I left hospital. I was eventually prescribed Laxido orange sugar free (months supply) which is OK and does the trick! Thank you for the daily emails which I looked forward to. I have already recommended your website to a friend of a friend – and suggested they buy your book so I’m sure they will feel the full benefit of your service. Elaine

Very useful to read others feedback after hysterecomy makes you feel not so isolated.

All regular emails were really well received. They answered all the questions I would ask and more. They offered extremely helpful tips and advice all of which I have taken on board and implemented. I have felt extremely well supported. knowledge is most certainly power. So far I am having a pleasant time recovering and much I have to admit is down to the advice and info you have provided.

I had a total hysterrectomy on July 15th 2011, after finding out I had cancer, which was a shock in itself, I felt totally alone until I found this website, it has made me feel alot easier knowing there were other women feeling like I do, this just put my mind at ease, and a month after having my operation,it has been nice to read daily e-mails.

The best help and and advise I have found. All the tips have been really good, it has kept me going through the not so good times and given me help and thoughts for the future. My hysterectomy was four weeks ago today and without your help I dont know what state I would have been in. Please keep it going for all the people like my self who didnt have a clue what recovery would be like or know what to expect. I cant thank you enough.

It is full of useful information and it is good you know you are not alone with how you feel. Just when you feel you are the only one feeling the way you do you read about others and how they overcame the problem which gives you great hope that there is light at the end of the tunnel

I loved my daily tips they kept me very updated and when I felt different feelings I knew it was a normal reaction.
the website is a godsend to us especially in the early days. Thank you for being so supportive

I loved obtaining simple, well documented information about things relative to my state of health at the momoent and the operation I’m going to have on the 26th Dec. Also knowing that there are loads of other people out there who are living through or who have gone through the same things as I am.

Dear Linda and colleagues.  I liked The proactive nature of the web site. The daily email and the links to other relevant web sites I am booked in on the 12 December for a vaginal hysterectomy because I need a prolapse repair. I found your web site during research and the information extremely reassuring. All the advice received was really sound, e.g. advice re avoiding constipation by eating stacks of fibre the day before the operation. Wondered about this and then you actually made a point of mentioning that this was something one could do! I have just received the 101 Handy Hints which I look forward to reading. Lots of us women are having the operation for a whole lot of different reasons and I think the way that the forums are organised is excellent because one can pick up on discussions relevant to one’s own condition. The links to various web sites again tremendously helpful. The Royal College of Gynaecology provided a time line regarding the recovery period and the information contained very helpful. As someone who likes to think she has a positive attitude to life I feel that the tone of your web site is extremely optimistic and I find this reassuring.

I found the daily Hints & Tips, short and too the point and very informative, will buy the book on the back of this. It has been a great help for my wife during this stressful time

I found web site very useful for checking on recovery progress. I found the recovery chart particularly useful as I didnt know what I should and shouldnt be able to do.

I really liked the e-mails you sent me. They were very comforting before and after the operation. Your advice was very helpful. The free booklet was good too.

It is fantastic I got so much information and looking forward to all the emails that Linda sent me every day , she is amazing and very supportive

The information was very helpful , I really looked forward to receiving an Email from you. I am not a regular user of the internet but still found the Website really easy to use. Many Thanks Judith

I loved the variety of seemingly unbiased information and another view point, not that of the doctors/hospital/nhs.

Incredibly informative. Felt very alone after my laparascopic sub-total hysterectomy (14 November 2011). I was given very little post-operative information and the website answered a lot of the questions I had.

I really appreciated the reassurance before and after the op as I was petrified. The tips and the opportunity to correspond with others – helps to feel you are not alone. Newsletters have also been invaluable – thank you so much, this was there at a time when I needed it most and I would most certainly recommend it to others.

I particularly liked the useful explanations about things and found that it answered all my queries around having the operation and the recovery period afterwards.

I found the site helpful and informative. I am 3 weeks post total abdominal hysterectomy op and the site has explained many of the queries I have had. thank you

Have enjoyed receiving the daily emails very much, and have often followed leads. Have read forum posts but not participated. I trust the website and its information, have found everything to be of value and well presented.  I’d been put off the internet by a bad experience with the “HERS” US-based website, a lobbying group against hysterectomies, very biased, unbalanced ‘information’. To be blunt, it scared the hell out of me, and I actually put off having a hysterectomy because of it – not helpful. I’m telling you this because I found that link through the “Wikipedia” article on hysterectomies, which is quite a good article, and I thought the link would be kosher. Probably many women use that as their starting point. Perhaps you could also warn women about it on your own website. Unfortunately, it was one of the first places I saw about hysterectomies and it put my health back because I avoided having an operation I needed, such a shame. None of the dire consequences promised on their website have been true for me – your website has proven far more balanced and informative.

I found the information very helpful and reassuring, especially the daily hints and tips. I had a hysterectomy 4 weeks ago and the hints and tips I received were uncannily well timed. If I’d been getting concerned about something new I was experiencing I’d go and check my email the next day and find a paragraph or two about the very same thing! Linda is very friendly and approachable and the site is reassuring and practical, no unnecessary scare stories, just helpful information and guidance. I fully recommend having a look at the Hysterectomy Association’s website if you’re considering, or have had a hysterectomy. Many thanks! )

“Thank you very much for all your emails, I have found them very useful and a daily support in the build up to my sub total hysterectomy and bilateral salpingo-oopherectomy .. I have spent hours searching your website and have read 101 handy hints to a happy hysterectomy and a pocket guide, all very informative and helpful in preparing me for my operation and what to expect afterwards.”

Very comprehensive and sensible information.

The Hysterectomy Association provided the answers to questions that I needed to know. These would have been dealt with by the hospital eventually but I needed to know the and then !!!! If I understand what the reasons are for directives then I am settled in my mind.

I love the honesty of your members. The ease of which people talk and nothing is a topic untouched.

The information and forums on the website helped me get a better make an informed decision to keep my cervix as I’m only 41 and explain the “wind” situation which has been very uncomfrtable although easing now i’m moving about more although also getting more sore at the end of the day so it’s a balance

Lots of information, to help prepare myself for my op. Little worries and major ones are covered and the forum is good to read to see how others deal with it.

It has been my main source of information, both before and after having my hysterectomy. I have found the forums incredibly useful in answering my questions. The tips have also been handy in providing further small ways in which to make my recovery smoother. I have also bought a book and some products from the website and have been very happy with the service.

Everything has been so helpful but I did enjoy the forum where you can find endless info to put your mind at rest at a time you are feeling low and vulnerable.

Very helpful. Enjoyed reading hints-looked forward to them! Had not had any other information orther than not to drive!

The website is brilliant. It has everything you need to help you through this tough time.
The two weeks of e-mails were also a bonus with hints and tips.

I wish that I had signed up to this before my op as it has given me lots of help and advice that I could only get from someone who has been through it. I am 7 weeks post op now and getting stronger every day and I really looked forward to my emails every day it has really helped me get through it. It may be a helpful for other women if you can tell doctors or hospitals to tell patients to log on and they too can benefit before and after their op.

I recieved virtually no info post up, and had loads of unanswered questions. This website has provided me with all the answers and reassurance i needed. It is also brilliant to chat to other women in the same boat. Thank you so much

It was useful to be able to find answers or solutions to questions and queries from other people.

I really liked the daily email and also the advice given in bite size chuncks in ’101 Handy Hints for a Happy Hysterectomy ‘. I was told that I needed a hysterectomy out of the blue and I’m hoping that it is going to resolve all the health problems I had for 4 years. A frriend recommended your site so I’ve got all your info well in advance – I’m still waiting for the biopsy to check for cancer and haven’t got a date for my hysterectomy yet but it means that I can get prepared slowly, within my limited energy reserves.

Everything your website is so hellpfull and made me feel a whole lot better, it helped because there are other women going through the same problems and post op troubles as me…thank you … your awesome x

I wish I had known about this website before I had my operation. I had a total abdominal hysterectomy with ovaries and cervix out 7 weeks ago. There were some complicatons afterwards, e.g. bladder did not cooperate, then I had a haematoma behind the vaginal vault and a stitch came out, gushes of watery discharge for weeks, followed by MRI and CT scans to see what the problem was. First I thought my bladder was leaking as they had to separate the uterus from the bladder. All in all a traumatic experience. Looking up things on the website and receiving your emails was a great comfort. Thank you

I particularly like the reassurance from Linda that all the things I had wondered or worried about seemed to be covered. eg Bowel problems, general pain,feeling exhausted etc.

I liked all of the information I found on your web site. I just wish I had found it sooner. I had my TVH on the 16th August and it was a couple of weeks later when I discovered you! Unfortunately when I left hospital I had a UTI and had three weeks of antibiotics. I was quite worried about it and had been given very little information, it was only through discovering your site that I started to gain confidence. Your e mails with very straight forward user friendly language really helped me. The step by step to recovery was very good, I could have done with that being given to me when I left hospital, because through lack of information from the hospital I was definitely pushing myself to do too much. This information sheet is invaluable and might I suggest including it in your first e mail. Thank you so much for all your help.

Great to find out things immediately when you have a question – someone on the forum has generally had a similar question! Lovely to recieve tips on a regular basis – keeps you going during the first few weeks of recovery!

Very helpful as i thought my after care was not good. You get told the basic from your G.P for first couple of weeks and thats only becasue i asked and then i have been left to fend for myself. I am back at the G.P today becasue i insisted on an appointment. Apparantly the hospital disharge you to your G.P when you leave hospital, nice of them to tell me. I am 5 weeks post op and this website has been quite informative thankyou.

I’m going to see the consultant in a few weeks to discuss hysterectomy after 2 failed ablations for heavy periods. I’m 39 and surprised that I don’t know anyone who’s had a hysterectomy in the last 15 years. I know that I need to be able to ask the consultant the right questions, but before I didn’t know what those questions were. Now I feel armed with the right information.

I also realise that I need to plan for what’s going to happen post-op, something I hadn’t really considered. It’s the practical side of your website that’s brilliant. As soon as I have a date, I’m off to buy some decent hold-your-insides-in pants, a huge stack of books and a teasmade.

Thank you so much, I shall be a regular visitor to your site.

I am back at home after having my hysterectomy and I want to thank you for all the hints you have been sending.  I had a complete hyster, due to having cancer they decided to take out all but the kitchen sink (so as to say!) and I have a huge scar!  All went went but I have to say the trapped wind situation was agony and lasted 2 days.  I took your advice re: peppermint cordial, which i hated because it was so sweet, also had peppermint tea.    Thanks for all your tips and help!  I found the website very useful and reassuring.

Thank you for all the information I found it very informative and all the fears were taken away before the operation. All the tips were very helpful and I referred back to the site after the operation.

I work in pharmacy here in Ireland and have a customer who will be having a hysterectomy this month. She is very anxious and my concern was that she wasnt being counselled enough. I joined your site and printed off the booklet and some of the mails your sent me and gave them to her. She was thrilled and very much reassured by your informative leaflets and mails. What has impressed me most is that your language is comforting and inclusive..and full of experience.It makes the information very accessible.

The daily emails all the information I have received had been accurate and has allowed me to have confidence that my recover is progressing well and any problems I have encountered were to be expected and that if j need help it us only and email away

I found the two weeks of information very helpful and I didn’t feel isolated. I have read the forum some of which is helpful and its a useful place to dip into. Thank you for being there. I intend to purchase a book but wasn’t sure if the email version is available on lap top or is it for kindle users.

It was very nice to have your emails. I felt I was in touch with someone who understood. The sad thing was I found you when I was in my 6th week. I wish I had you as as I was told I needed a hysterectomy. My op was due to the fact that I had cancer of the womb. I have been grateful for your help.

I liked the emails. They covered useful topics and advice some of which I have acted upon.
The information on the website was also useful like the information about exercise after the operation. I have tried to follow this as well as other advice regarding recovering from the op. Its early days (2 weeks) for me but I am feeling positive and doing a little more each day and that includes exercise.

The personal touch – very friendly and caring. You also give lots of help with things the hospitals never tell you. So much invaluable practical, reassuring advice. I am so grateful! Thankyou.

I enjoyed the daily hints and tips email. It addressed many of the questions I have and I was able to follow up on the information.  Thank you for these!

I liked the fact that information was nice and clear to understand and although it has to cover so many different aspects of hysterectomy you always found something relevant to your particular case.

I really liked the daily e mails. I registered for these after my op and it was good to read each day after recovery. I think the website is in the main informative and well orgnaised. It is the best source of information I found online.

I loved the questions and comments from experienced women. I don’t even have to post questions because it’s like some women know me and they are asking on my behalf. Know I am not alone in this and there are women out there just like me.